This time final month, 15-year-old Jordyn Walker was editor and photographer of her highschool newspaper, seasonal supervisor of the varsity’s baseball group, and a aggressive archer. Athletic, outgoing and multitalented, the Missouri teen had all the things going for her.
However her life modified on Dec. 12, when she was rushed to a Kansas Metropolis hospital for extreme stomach ache and uncontrolled bleeding.
Earlier than the night time was over, the teenager misplaced her imaginative and prescient and almost her life to a mysterious sickness — one which had beforehand precipitated her to bleed from her mouth, nostril and ears. Worse nonetheless, the sickness might resurface any time.
“All the medical doctors say that is unprecedented — that they’ve by no means seen something prefer it,” her father, Keith Walker, informed HuffPost by way of tears. “So, the trail proper now may be very unsure.”
After shedding her imaginative and prescient, Jordyn Walker needed to relearn all the things she beforehand relied on her imaginative and prescient for.
“I went my entire life seeing and instantly I’ve needed to adapt in a short time to being in fixed darkness,” she informed HuffPost. “I’ve to seek out my manner round [without sight] and relearn to do issues like consuming and getting dressed.”
Her father suspects no matter occurred to her is by some means associated to bowel and abdomen points his daughter has handled for many of her life. Over time, she has seen quite a lot of specialists, however the trigger was by no means pinpointed. The signs, he mentioned, would usually subside after a spherical of highly effective antibiotics.
The primary signal that one thing much more critical may be occurring together with her was throughout a sea cruise the household took in July 2017. Through the voyage, she turned in poor health. Her enamel damage, her abdomen ached, and he or she had bloody stools. She misplaced her sense of style and odor.
When she was again on shore, medical doctors ran quite a lot of checks and ended up treating her for a sinus an infection. In Missouri quite a lot of medical checks had been carried out, however nonetheless no solutions had been discovered. She ultimately regained her misplaced senses.
Jordyn Walker went again to having fun with life. All the pieces was wonderful till the primary week of December.
“Her mucus glands turned so infected that she began bleeding out her eyes, ears, and nostril,” Keith Walker mentioned. “She was rushed to an emergency room and was on a desk listening to folks speak about how she was bleeding out.”
Medical doctors stabilized her with blood platelets, her dad mentioned. After greater than per week in an intensive care unit, she was launched.
Jordyn Walker was admitted to the hospital once more on Dec. 12 — a date her household will at all times bear in mind.
“Her nostril was operating, her enamel damage, her face flushed, and her eyes began to swell,” mentioned Keith Walker. “My ex-wife pleaded with nurses to deal with Jordyn with [a steroid], however they had been hesitant to hearken to a hysterical mother and gave Jordyn an epinephrine injection.”
Inside two hours, the teenager’s face turned so swollen that her eyeballs protruded from her head, forcing medical doctors to chop her eyelids in an try to alleviate the strain, in line with her father. She then underwent surgical procedure to take away her orbital bones to permit her cranium to flex and drain.
The images under present Jordyn Walker at varied factors within the development of her illness and within the hospital, and so they could also be upsetting to some readers.
Whereas the surgical procedure doubtless saved her life, it failed to save lots of her imaginative and prescient. When she awoke, she was in full darkness.
“The surgeon, optometrist, and pediatrician all mentioned the optic nerve was broken past medical science’s capacity to repair it,” Keith Walker mentioned.
5 days earlier than Christmas, Jordyn Walker had facial reconstructive surgical procedure to switch the orbital bones round her eyes.
Dr. Travis Langner, the division chief of pediatric important care on the College of Kansas Medical Heart, is accustomed to her case and mentioned it seems she’s affected by some type of autoimmune illness.
“This presentation is certainly distinctive,” Langner informed Kansas Metropolis’s KMBC-TV this week.
Keith Walker informed HuffPost the best way medical doctors defined it to him is that she has an “unimaginable battle occurring” inside her physique.
“Often that battle is fought between good cells and unhealthy cells, however they suppose good cells are combating good cells as a result of they will’t inform the distinction,” he mentioned. “They don’t know why.”
The case garnered native media consideration, however not all of it has been correct, mentioned her stepfather, Shannon Loerzel.
“A number of the media is [reporting] she got here again from the cruise and was oddly sick,” Loerzel informed HuffPost. “In depth testing has been executed, and we don’t consider — nor do any of the medical doctors consider — the cruise had something to do with the signs she’s having.”
In response to Keith Walker, medical doctors in Kansas Metropolis lately referred his daughter to the Mayo Clinic in Minnesota. She is being admitted there on Jan. 16 for yet one more spherical of invasive testing.
Regardless of all the things she’s going by way of, Jordyn Walker mentioned she doesn’t need pity or solicitude. She mentioned she has a powerful household help system and is preserving an open thoughts in regards to the prognosis for blindness.
“Science is at all times growing and new issues are popping out on a regular basis,” she mentioned. “So that you by no means know. Both manner, I’m not going to take a seat round and mope about it.”
The teenager, who seems to be taking all the things in stride, mentioned she has some recommendation she needs to share with everybody who has learn her story.
“Admire what’s round you,” she mentioned. “No one actually takes it severely till its gone. Acknowledge what you will have and be pleased about it.”
“My daughter is a fighter,” Keith Walker mentioned. “She’s the hardest human being I’ve ever met on this planet. There’s nonetheless a goal for her and he or she’ll discover it.”